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Haemophilia . 2020 Oct 21

Quality of electronic treatment records and adherence to prophylaxis in haemophilia and von Willebrand disease: Systematic assessments from an electronic diary

Miguel J Lobo, Laia Reverte-Salisa, Ying-Chi Chao, Andreas Koschinski, Frank Gesellchen, Gunasekaran Subramaniam, He Jiang, Samuel Pace, Natasha Larcom, Ester Paolocci, Alexander Pfeifer, Sara Zanivan, Manuela Zaccolo, Helin Tercan, Niels P Riksen, Leo A B Joosten, Mihai G Netea, Siroon Bekkering, Maria Elisa Mancuso, Johnny Mahlangu, Robert Sidonio Jr, Peter Trask, Marianne Uguen, Tiffany Chang, Midori Shima, Guy Young, Johannes Oldenburg, Sylvia von Mackensen, Andreas Tiede, Santiago Bonanad, Amparo Santamaria, Georg Goldmann, Mariana Canaro, Antonio Palomero, Luis J G Frade, Juan Eduardo Megias-Vericat, Fernanda Martinez, Faustino Garcia Candel, Victor Jimenez Yuste, Monika Sparber-Sauer, Susan Halimeh, Daniela Adolf, Martin Hukauf, Jan Reichmann, Johannes Oldenburg

Introduction: HaemoassistTM 2 is an electronic system designed for people with bleeding disorders and their physicians to record prophylactic infusions and treatment of bleeds. It aims to improve adherence by permitting reminders and accuracy of documentation by facilitating real-time reporting.

PMID: 33084135