Experiences of Health Research Data Sharing Among Researchers in Sub-Saharan Africa: Cross-Sectional Study.

BACKGROUND: Digital platforms play a vital role in improving the availability and access to health research outputs, enhancing the engagement of policy makers and practitioners in the research processes. Despite their potential, it needs to be explored how digital platforms are used to manage and share health research datasets and publications, and to translate research findings among health networks or institutions in sub-Saharan Africa (SSA).

OBJECTIVE: This study aimed to assess the practices of health research data management, including sharing among researchers and their support staff within 3 large research networks for health innovations in SSA.

METHODS: A cross-sectional mixed methods survey was conducted across 3 research networks in SSA, showing experiences of sharing research data using digital platforms among researchers of 3 large research and innovation networks in SSA and affiliated institutions in the Global North. A total of 160 respondents completed a self-administered web-based questionnaire, and following data cleansing, the survey data were analyzed using both descriptive and inferential statistics.

RESULTS: Most respondents (91/160, 56.9%) used electronic data collection tools to collect research data. Almost half (79/160, 49.4%) of the respondents have a digital research data management platform. More than half of the respondents shared their research datasets (102/160, 63.8%), and 61.3% (98/160) shared research findings with the research community through different channels. Furthermore, most respondents shared their research datasets and research outputs through institutional data repositories (42/160, 26.1%), scientific conferences (123/160, 76.9%), and journal articles (110/160, 68.8%). This study found that parameters such as sex, professional category (health professional, information and communication technology professional, and data managers), and the role (researcher or student) influence health research data sharing within the community. The results show that the roles of the individual have the strongest association with the sharing of research datasets, followed by years of experience in research, then sex, and profession. Females were less likely to share their research datasets than males. Data managers and information and communication technology professionals exchanged datasets less frequently in the professional group, and the researcher's role was statistically significant in sharing research datasets.

CONCLUSIONS: This study demonstrates that most researchers share research datasets and outputs through various channels. It was further found that digital platforms were essential in managing and sharing research datasets and publications since more than half (85/160, 53.1%) of the respondents have and use digital platforms. In addition, the study identified factors that influenced researchers' practices of sharing research datasets and publications. Furthermore, key gaps limit the sharing of these research datasets, including inadequate infrastructure, insufficient African dataset sharing platforms, a lack of institutional policy, and limited skills to use available platforms.

© Felix Sukums, Bernard Ngowi, Rebecca Chaula, Kim L Weiszhar, Akili Kalinga, Olena Ivanova, Clarissa Prazeres da Costa, Achim Hoerauf, Sundeep Sahay, Emilia Virginia Noormahomed, Linda B Debrah, Chummy Sikasunge, Helena Ngowi, Andrea S Winkler. Originally published in JMIR Formative Research (https://formative.jmir.org).

PMID: 41129781