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Publications

featured publications

  • Health-related quality of life and health status in adolescent and adult people with haemophilia A without factor VIII inhibitors-A non-interventional study.

    Haemophilia : the official journal of the World Federation of Hemophilia

    Authors: Johannes Oldenburg, Huyen Tran, Flora Peyvandi, Ramiro Núñez, Peter Trask, Sammy Chebon, Johnny N Mahlangu, Michaela Lehle, Victor Jiménez-Yuste, Sylvia von Mackensen

  • Functional and Structural Characterization of Nucleic Acid Ligands That Bind to Activated Coagulation Factor XIII.

    Journal of clinical medicine

    Authors: Nasim Shahidi Hamedani, Arijit Biswas, Oliver Rudan, Rosa Tönges, Carlotta Meyring, Fabian Tolle, Günter Mayer, Johannes Oldenburg, Jens Müller, Bernd Pötzsch

  • Familial Multiple Coagulation Factor Deficiencies (FMCFDs) in a Large Cohort of Patients-A Single-Center Experience in Genetic Diagnosis.

    Journal of clinical medicine

    Authors: Barbara Preisler, Behnaz Pezeshkpoor, Atanas Banchev, Ronald Fischer, Barbara Zieger, Ute Scholz, Heiko Rühl, Bettina Kemkes-Matthes, Ursula Schmitt, Antje Redlich, Sule Unal, Hans-Jürgen Laws, Martin Olivieri, Johannes Oldenburg, Anna Pavlova

  • Activated Factor XI is Increased in Plasma in Response to Surgical Trauma but not to Recombinant Activated FVII-Induced Thrombin Formation.

    Journal of atherosclerosis and thrombosis

    Authors: Heiko Rühl, Anne M Friemann, Sara Reda, Nadine Schwarz, Franziska I Winterhagen, Christina Berens, Jens Müller, Johannes Oldenburg, Bernd Pötzsch

  • Natural history study of factor IX deficiency with focus on treatment and complications (B-Natural).

    Haemophilia : the official journal of the World Federation of Hemophilia

    Authors: Amy D Shapiro, Margaret V Ragni, Munira Borhany, Yasmina L Abajas, Michael D Tarantino, Katharina Holstein, Stacy E Croteau, Riana Liesner, Cristina Tarango, Manuela Carvalho, Catherine McGuinn, Eva Funding, Christine L Kempton, Christoph Bidlingmaier, Alice Cohen, Johannes Oldenburg, Susan Kearney, Christine Knoll, Philip Kuriakose, Suchitra Acharya, Ulrike M Reiss, Roshni Kulkarni, Michelle Witkop, Stefan Lethagen, Sharyne Donfield, Petra LeBeau, Erik Berntorp, Jan Astermark

  • Extended Half-Life Factor VIII/Factor IX Products: Assay Discrepancies and Implications for Hemophilia Management.

    Hamostaseologie

    Authors: Jens Müller, Georg Goldmann, Natascha Marquardt, Bernd Pötzsch, Johannes Oldenburg

  • Molecular Profiling of Liver Sinusoidal Endothelial Cells in Comparison to Hepatocytes: Reflection on Which Cell Type Should Be the Target for Gene Therapy.

    Hamostaseologie

    Authors: Osman El-Maarri, Muhammad Ahmer Jamil, Johannes Oldenburg

  • Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical company.

    Haemophilia : the official journal of the World Federation of Hemophilia

    Authors: Charles R M Hay, Midori Shima, Michael Makris, Victor Jiménez-Yuste, Johannes Oldenburg, Kathelijn Fischer, Alfonso Iorio, Mark W Skinner, Elena Santagostino, Sylvia von Mackensen, Craig M Kessler

  • Health-related quality of life and caregiver burden of emicizumab in children with haemophilia A and factor VIII inhibitors-Results from the HAVEN 2 study.

    Haemophilia : the official journal of the World Federation of Hemophilia

    Authors: Maria Elisa Mancuso, Johnny Mahlangu, Robert Sidonio, Peter Trask, Marianne Uguen, Tiffany Chang, Midori Shima, Guy Young, Johannes Oldenburg, Sylvia von Mackensen

  • Quality of electronic treatment records and adherence to prophylaxis in haemophilia and von Willebrand disease: Systematic assessments from an electronic diary.

    Haemophilia : the official journal of the World Federation of Hemophilia

    Authors: Andreas Tiede, Santiago Bonanad, Amparo Santamaria, Georg Goldmann, Mariana Canaro, Antonio Palomero, Luis J G Frade, Juan Eduardo Megias-Vericat, Fernanda Martinez, Faustino Garcia Candel, Victor Jimenez Yuste, Monika Sparber-Sauer, Susan Halimeh, Daniela Adolf, Martin Hukauf, Jan Reichmann, Johannes Oldenburg