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Publications

featured publications

  • Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical company.

    Haemophilia : the official journal of the World Federation of Hemophilia

    Authors: Charles R M Hay, Midori Shima, Michael Makris, Victor Jiménez-Yuste, Johannes Oldenburg, Kathelijn Fischer, Alfonso Iorio, Mark W Skinner, Elena Santagostino, Sylvia von Mackensen, Craig M Kessler

  • Health-related quality of life and caregiver burden of emicizumab in children with haemophilia A and factor VIII inhibitors-Results from the HAVEN 2 study.

    Haemophilia : the official journal of the World Federation of Hemophilia

    Authors: Maria Elisa Mancuso, Johnny Mahlangu, Robert Sidonio, Peter Trask, Marianne Uguen, Tiffany Chang, Midori Shima, Guy Young, Johannes Oldenburg, Sylvia von Mackensen

  • Quality of electronic treatment records and adherence to prophylaxis in haemophilia and von Willebrand disease: Systematic assessments from an electronic diary.

    Haemophilia : the official journal of the World Federation of Hemophilia

    Authors: Andreas Tiede, Santiago Bonanad, Amparo Santamaria, Georg Goldmann, Mariana Canaro, Antonio Palomero, Luis J G Frade, Juan Eduardo Megias-Vericat, Fernanda Martinez, Faustino Garcia Candel, Victor Jimenez Yuste, Monika Sparber-Sauer, Susan Halimeh, Daniela Adolf, Martin Hukauf, Jan Reichmann, Johannes Oldenburg

  • Molecular Analysis of Fetal and Adult Primary Human Liver Sinusoidal Endothelial Cells: A Comparison to Other Endothelial Cells.

    International journal of molecular sciences

    Authors: Muhammad Ahmer Jamil, Heike Singer, Rawya Al-Rifai, Nicole Nüsgen, Melanie Rath, Sascha Strauss, Ioanna Andreou, Johannes Oldenburg, Osman El-Maarri

  • Optimizing the management of patients with haemophilia A and inhibitors in the era of emicizumab: Recommendations from a German expert panel.

    Haemophilia : the official journal of the World Federation of Hemophilia

    Authors: Carmen Escuriola-Ettingshausen, Günter Auerswald, Christoph Königs, Karin Kurnik, Ute Scholz, Robert Klamroth, Johannes Oldenburg

  • Infiltration and Clustering of Major Histocompatibility Complex II Antigen-Presenting Cells in the Skin of Patients with Atopic Dermatitis.

    The Journal of investigative dermatology

    Authors: Wenming Peng, Bartlomiej Kwiek, Chunfeng Yu, Natalio Garbi, Jean-Pierre Allam, Johannes Oldenburg, Natalija Novak

  • Bleeding symptoms in patients diagnosed as type 3 von Willebrand disease: Results from 3WINTERS-IPS, an international and collaborative cross-sectional study.

    Journal of thrombosis and haemostasis : JTH

    Authors: Alberto Tosetto, Zahra Badiee, Mohammad-Reza Baghaipour, Luciano Baronciani, Javier Battle, Erik Berntorp, Imre Bodó, Ulrich Budde, Giancarlo Castaman, Jeroen C J Eikenboom, Peyman Eshghi, Cosimo Ettorre, Anne Goodeve, Jenny Goudemand, Charles Richard Morris Hay, Hamid Hoorfar, Mehran Karimi, Bijan Keikhaei, Riitta Lassila, Frank W G Leebeek, Maria Fernanda Lopez Fernandez, Pier Mannuccio Mannucci, Maria Gabriella Mazzucconi, Massimo Morfini, Johannes Oldenburg, Ian Peake, Rafael Parra Lòpez, Flora Peyvandi, Reinhard Schneppenheim, Andreas Tiede, Gholamreza Toogeh, Marc Trossaert, Omidreza Zekavat, Eva M K Zetterberg, Augusto B Federici

  • Molecular Insights and Functional Consequences of the Interaction of Heme with Activated Protein C.

    Antioxidants & redox signaling

    Authors: Marie-Thérèse Hopp, Nour Alhanafi, Ajay Abisheck Paul George, Nasim Shahidi Hamedani, Arijit Biswas, Johannes Oldenburg, Bernd Pötzsch, Diana Imhof

  • Outcomes in children with hemophilia A with inhibitors: Results from a noninterventional study.

    Pediatric blood & cancer

    Authors: Johannes Oldenburg, Midori Shima, Rebecca Kruse-Jarres, Elena Santagostino, Johnny Mahlangu, Michaela Lehle, Nives Selak Bienz, Sammy Chebon, Elina Asikanius, Peter Trask, Maria Elisa Mancuso, Victor Jiménez-Yuste, Sylvia von Mackensen, Gallia G Levy

  • Further Evidence That MicroRNAs Can Play a Role in Hemophilia A Disease Manifestation: Gene Downregulation by miR-19b-3p and miR-186-5p.

    Frontiers in cell and developmental biology

    Authors: Katarzyna I Jankowska, Joseph McGill, Behnaz Pezeshkpoor, Johannes Oldenburg, Zuben E Sauna, Chintamani D Atreya